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Post Info TOPIC: My experience with steroids
patsypratt


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My experience with steroids
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Hi everyone

I just wanted to share my recent experience having had a relapse and subsequent steroids. Relapse started on 4th Jan with severe vertigo upon movement of my eyes, accompanied by a strong electric shock feeling down my limbs.
Saw MS nurse on 11th Jan who prescribed (via consultant) 5 days of oral steroids (5x100mg tablets for 5 days). I took the full course 12th to 16th Jan. They seem to have done the trick with the relapse symptoms, I don’t seem to be having that now, so positive in that sense.

Side effects experienced from the steroids themselves haven’t been very nice. I’ve had strange energetic ‘up’ moods, a little like euphoria, but have also felt down and have cried a lot over nothing. I’ve had insomnia (not every night) and heartburn that I’ve treated with rennie. I’ve taken regular painkillers just as a back up really. The end of the few days of treatment gave me really bad water retention which isn’t a nice feeling and you should really try and do absolutely nothing. A little cooking made me a lot worse so try and rest. Luckily I have a wonderful husband who cooks etc.

I think the water retention is slowly subsiding but since finishing the tablets (on Monday 16th), I’ve felt completely and utterly drained. My body feels bruised all over and is still painful, presumably from the skin being stretched and full of fluid. I’ve barely got out of bed for 3 days and keep sleeping. I feel really weak and can’t really be bothered to even read much in bed.
I wanted to share what I’ve gone through (positive or not) as I feel like there are always unanswered questions when getting new drugs etc.

I’m 41, diagnosed in 2015 and I’m on Fingolimod currently but will be having an MRI in a few weeks and they will review whether to switch drugs or not.

I am more than happy for anyone to post questions about my side effects etc. This is a support forum after all!



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josaphsamuel


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IMO, oral steroids are the pits. I’ve only had to take them once and the side effects were so bad that I never want to take them again.

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sanchewz


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Thanks for sharing your experience with steroids. It sounds like you've been through a lot recently. When I had a similar experience with medication side effects, I found that taking care of myself became the top priority. A friend who's into fitness suggested Fit N Flexed supplements for recovery support after intense workouts, and I wondered if there might be something similar for managing recovery from treatments like yours. It's great to hear you're finding relief from the relapse symptoms, though it's tough dealing with the aftermath.



-- Edited by sanchewz on Thursday 18th of July 2024 02:11:21 PM

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